Smiling baby with spiky hair being held, wearing a blue garment, in a cozy setting.
Baby with pink bow in hair in front of decorated Christmas tree
A baby in a floral outfit sitting on an adult's lap

About Moira

Moira Jean was born September 16, 2021. We knew there were some things that would need to be addressed once she was born, but we didn’t know we would be separated in different hospitals night one, spend 43 days in the NICU, and have to get a feeding tube to help her eat.

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MORE UPDATES COMING SOON

Newborn baby wrapped in a white blanket wearing a striped beanie.
Young child smiling, wearing pink flamingo-patterned pajamas.
Close-up of a smiling baby wearing a floral outfit, lying on a colorful blanket.
Logo of the KAT6 Foundation featuring the text "KAT6" with a DNA helix design in the number "6" and the word "Foundation" underneath.

Learn about KAT6B

KAT6B is a rare genetic syndrome resulting from a mutation in the KAT6B gene.

Diagram illustrating how the eye works, showing an eye, optic nerve, and brain anatomy including the visual cortex and lateral geniculate nucleus. An apple is depicted as the object being viewed, with labels for parts of the eye such as the retina, sclera, cornea, lens, and optic disc.

Learn about CVI

With CVI, the brain has difficulty converting the raw data from the eye into a reliable, meaningful image of the world that can be interpreted and acted upon.

Baby with spiky hair smiling, wearing a dark blue outfit, holding a cloth, with a fireplace in the background.

Moira’s Favorites

A list and links to Moira’s favorite toys and mom’s favorite items to help with Moira.